Entry from 6/25/2009

(this is an entry I wrote while we were still told he had micro penis and were having karyotype testing done, I still did not feel comfortable sharing with anyone that this is what we were told his condition was):


Monday I went to the diagnostic center for his blood work, they were doing two tests. They could not be a heel prick and had to draw from a vein.
After the FIFTH vein prick - with no luck (bleeding but no luck drawing) I said THAT'S ENOUGH!!!
Seriously did they not know what the hell they were doing? 5 pricks (two in one arm, two in the other and one in his hand and no luck?) f'ks sakes man..not working!
So they go "you can come back this afternoon"..again NO THANK YOU!! HIRE someone with experience drawing blood from babies and THEN and ONLY then will I come back. poor baby was tortured enough.
SO with that anger (and not at lab techs they were nice, i was just pissed at the situation) I drove to his pediatricians and said "look he's been pricked the blood wont come just give me a referral to the specialist already this is all unnecessary until he sees the specialist!"
She's all "okay I can do that".
Mind you last week at his vax's she said she'd get us a referral to unc or duke AFTER we got the blood work done.
Well she leaves for a while (never once asked for his name to check the file) and comes back ten min later and says "here my nurse will explain to you how the referrals work"
okaaaaaaaaay I think..
I hate this woman anyway bc she has screwed up our appointments in the past..
so she is all "i have been calling for several weeks and am waiting for them to call back"..
errr WHAT? lady I only asked LAST week for a referral are you joking me?? LIAR!! so I called her out and she's all "errr I mean today I will get one today I promise"..
So I go "okay so I will hear form you today?" and she swears up and down I will..
so i go "okay" then she says it's a local place..and I'm all "hold up the doctor told us unc or duke, so what the hell, can someone give us a straight up answer?"
STUPID so STUPID! I wanted to fire her on the spot! seriously!
So I'm like okay let me leave and calm down I am already bitchy bc she should of done this as he was in the hospital after the c section but she did not..
SOOO monday came and went, tuesday came and went, no call, I said enough is enough I call the local specialist myself, no word back..
That night I go to bed late with anxiety and worry over my sons condition and wanting to go postal on the pediatrician for not doing HER job..
So I decide to go onto unc's website and look up the specialist for my son myself..I figure it's 2 am I can't call so I just write an email and spill my heart out and literally BEG for him to see my son since I am getting the run around for the last almost 10 weeks, ENOUGH IS ENOUGH!
I didn't expect a reply, hell everyone else has given us a run for our money..
but I checked my spam folder the next morning and his assistant wrote me back told me her heart broke for us and said he should have been seen STAT as a newborn and told us the very earliest she could get us in would be 14 september..:(
She left a number and I called right away. She set it upa nd we are on a waiting list incase anyone drops off before the 14th she will pencil us in first.
THANK GOD SOMEONE HEARD OUR PRAYERS.
I don't get it, WHY WHY WHY didn't the pediatrician do this for us? why did we get lied to? why are we being given the run around like it's nothing? is it perhaps bc she KNOWS she neglected to do his newborn testing and karyotyping?!!! can she be in legal trouble for this if something happens to my son bc she didn't do the testing like the government SAYS she should for this condition?
this condition has a strict protocol to follow bc babies with this condition can go into shock and die, why didn't she do this? THANK GOD my son is okay THANK F'N GOD but man if anything happens i swear to GOD i will have her ass.
So I fully plan to call her tomorrow and be all "hey it's funny your nurse couldn't get out referral and I did in one night, maybe you need to find better staff!"
and believe me ONCE all is said and done I am TOTALLY chucking her and finding a new care provider for my children. This is absolutely ridiculous and as a parent with a child with a defect, it's stressful enough without being lied to by someone you TRUST with your child's LIFE.
I am so glad sometihng told me to email UNC and I am even more thankful they cared enough - I mean TRULY cared enough to write me back and get me the earliest apt and put me on the urgent list.
So yes, it's been no picnic and I just pray it all goes over well. I am literally at wits end with the medical staff of this shit city in NC I live in. From them losing my paper work for the c section and making me go home while my son was on fetal distress from low amniotic fluid to do a 24 hour urine all the way to them rushing the c section the next day bc they realized they screwed up...
yeah... i am NOT sue happy AT ALL, i am thankful all went well with surgery..but this time with the pediatrician, all i can say is nothing better be seriously wrong with my son that SHE should have tested for from day one. UGH.
And her answer "well your insurance bla bla bla"
My answer, LADY PLEASE i have a credit card, what the hell do you think i have a credit card for?! emergencies! MONEY should not be an object when it comes to your children's health, and the fact she said that just makes me want to scalp her even more.
I really need a chill pill. Venting is a start:)